Kim called yesterday. Hayley was supposed to start swimming to move her muscles so they don't atrophy. Instead, she went to the doctor. Kim called from the freeway stating they were on their way to Primary Children's...the ER was waiting for them. They did a CT scan and within 10 minutes, admitted her (for the third time this month). Her color wasn't good when we saw her on Sunday. The doctors said her oxygen levels were very low and she was coughing up some blood.
At 10:30 p.m., Kim called and they will be doing a bronchoscopy this morning. Poor thing can't eat anything until it's over. She said Hayley slept well last night, but Kim didn't. Her immunologist is right on top of things and they have done every test known to mankind! One of the doctors said that Hayley is an enigma....(we just call her Hayley!). She's had more blood work done, now we just wait...again. Seems like this disease is going in different directions than it's supposed too. Where's House when you need him!!!...he gets things fixed in one hour!!!
We're asking for your thoughts and prayers for this one.